It’s been a year so let’s Play Ball!

Well it’s been over a year since Colin had DBS surgery and I’m so happy to say he is better then ever! He signed up for baseball and is enjoying every minute of it. It’s hard to believe that this time last year he was in a wheelchair and could not play baseball. Colin had additional programming in March and they did a complete work up as we had noticed some areas not improving. What we found out was that the pulse width and frequency was up too high. They turned down both, and now he is doing so well and it’s so exciting to see. He even told me today that he only feels a slight twitch every now and then in his arm and foot. This is something that I don’t even notice and I don’t think he usually does either. We are scheduled to go back in 6 months. Since Colin is doing so well and just being a normal kid again I may not be posting as much. However, I do hope that this blog of Colin’s journey helps give hope to other families and children that might be struggling with Dystonia or the decision to have DBS surgery. Thanks so much for being a part of our lives this year and as we move into the next!

Leave a Reply

Your email address will not be published.