Category Archive: Dystonia

Apr 26

It’s been a year so let’s Play Ball!

Well it’s been over a year since Colin had DBS surgery and I’m so happy to say he is better then ever! He signed up for baseball and is enjoying every minute of it. It’s hard to believe that this time last year he was in a wheelchair and could not play baseball. Colin had …

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Dec 31

Merry Christmas and Happy New Year!

Colin had some additional programming on December 5th. We are still working on minor twitching and fine tuning but Colin is doing fantastic! They increased his voltage to 3.5 and told us to wait 2 weeks and if we did not notice a difference they gave us the ability to adjust his setting for an …

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Sep 16

Running with the Big Boys!

This is a photo of Colin running on the football field with his brother. He was invited by the team to run through the tunnel in support of all that he has been through this past couple of years. Colin was so excited to be on the field with the varsity team during their home …

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Aug 10

Soccer Star!

Soccer season is in full swing and we are so excited to see Colin run better than he has in over a year! He is completely off all medication and his voltage is set at 3.0. He has been receiving stimulation from the DBS system for almost 4 months. He has an apt. to see …

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Jun 28

Happy Summer!

Hope all of you are enjoying your summer so far. The above photos are Colin enjoying the Fair. We were just so excited that he was able to walk the entire fair grounds all day with no problems at all! This was his first time out walking around for this length of time in over …

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May 22

4 weeks turned on and Playing Ball!

We waited a little while to update the blog as we’ve been kind of holding our breath, but we can’t deny it any longer. He is walking, running and playing ball! Colin has been receiving stimulation from the DBS for 4 weeks now and is doing great. We have been upping his voltage and now …

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Apr 27

Final Step!

  Today was the final day at the Dr’s office. He got his third head turbin replaced and bandages removed from his chest, and first programming done.   Left: Colin with implanted boxes in his chest. Center: The boxes that were implanted in each side of his chest. The inner wire as shown is the …

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Apr 27

To all my friends, THANK-YOU!

In Colin’s words (edited by mommy and daddy). Whew it has been a long month, we’re almost done with all of this and I am so relieved!. Really looking forward to getting back to my home, my dogs, cat and especially my brother, sister and all my friends, family and classmates! I want to thank …

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Apr 20

Second Surgery Success!

Colin’s final surgery to implant the battery packs was a success. His surgery lasted approximately 2 hours. This surgery was a little more painful then the last as they had to tunnel in the wires from his brain stimulators, to behind his ears, neck, chest, and finally down to the battery packs which has caused …

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Apr 20

Colin Pre Surgery for Battery Packs

This is a photo of Colin pre surgery to implant the battery packs in his chest. We arrived at the hospital at 5:30 a.m. and surgery began around 8:00 a.m. He was so happy to get the bandage wrap off of his head as you can see by his huge smile in this photo. He …

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