Most commented posts
- Breaking Through the Barriers of Dystonia — 35 comments
- Staples Removed! — 23 comments
- One Surgery Down, One to Go — 21 comments
- Final Step! — 15 comments
- 4 weeks turned on and Playing Ball! — 12 comments
Sep 16
This is a photo of Colin running on the football field with his brother. He was invited by the team to run through the tunnel in support of all that he has been through this past couple of years. Colin was so excited to be on the field with the varsity team during their home …
Aug 10
Soccer season is in full swing and we are so excited to see Colin run better than he has in over a year! He is completely off all medication and his voltage is set at 3.0. He has been receiving stimulation from the DBS system for almost 4 months. He has an apt. to see …
May 22
We waited a little while to update the blog as we’ve been kind of holding our breath, but we can’t deny it any longer. He is walking, running and playing ball! Colin has been receiving stimulation from the DBS for 4 weeks now and is doing great. We have been upping his voltage and now …
Apr 27
Today was the final day at the Dr’s office. He got his third head turbin replaced and bandages removed from his chest, and first programming done. Left: Colin with implanted boxes in his chest. Center: The boxes that were implanted in each side of his chest. The inner wire as shown is the …
Apr 27
In Colin’s words (edited by mommy and daddy). Whew it has been a long month, we’re almost done with all of this and I am so relieved!. Really looking forward to getting back to my home, my dogs, cat and especially my brother, sister and all my friends, family and classmates! I want to thank …
Apr 20
Colin’s final surgery to implant the battery packs was a success. His surgery lasted approximately 2 hours. This surgery was a little more painful then the last as they had to tunnel in the wires from his brain stimulators, to behind his ears, neck, chest, and finally down to the battery packs which has caused …
Apr 20
This is a photo of Colin pre surgery to implant the battery packs in his chest. We arrived at the hospital at 5:30 a.m. and surgery began around 8:00 a.m. He was so happy to get the bandage wrap off of his head as you can see by his huge smile in this photo. He …
Apr 08
Colin had his head wrap and staples removed on Friday April 6th. After this shot he got new bandages and head wrap that he will continue to wear through April 19th, the date of is his second surgery to implant the boxes. He was so relieved and finally smiled once all was removed. A closeup …
Mar 30
Colin post surgery just after opening his eyes. Everything with the surgery was a perfect success with no complications. He woke up at around 1pm with head pain from the stitches and a really scratchy throat. He will get icechips at 4pm to help with his throat. Right now he is talking and visiting with …
Mar 30
We wanted to give you an update on Colin. We took this photo right before he went into surgery. He seemed in good spirits and just wanted to play his DS football game as long as possible. The surgery started at 8:42 am and we received an update at 10:30 that all is well. They …
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